SEEING THE UNSEEN / DROP FOOT - WORK IN PROGRESS

This is Lemtrada the brand name for the medication Alemtuzumab, a monoclonal antibody used to treat highly active relapsing-remitting multiple sclerosis (MS) in adults. It works by targeting and reducing the immune cells that attack the myelin sheath around nerves.

I had a 5 day course last year, and recently again for 4 days. It costs £7,045.00 ($10,653.50) per vial.

Five years ago I could run 10k in under an hour, I was fit. Hiking up Stickle Tarn in the Lake District was my favourite. I was like a mountain goat, fast, agile and nimble with massive amount of reserve energy, the ability to keep going when others flagged. Being brought up in north Derbyshire these are the landscapes where I find my calm, strength and solace. Now I’m weak as a kitten. MS is a bastard it really is, but rather than feel sorry for myself I decided to do what I love and photograph and film others with MS, to capture their strength, their resilience and their stories, highlighting what can be a very hidden disease.

Aside from not being able to walk properly, the most annoying and upsetting symptom is thinking about needing a pee. I need to go instantly as soon as the urge or thought arrives, I have no time. Its a bloody nightmare especially when in public (this is why I now alway recce the nearest toilet). I have a hack which only works for men, talking to women with MS, theirs is more of a nightmare. We’re talking adult nappy nightmare. I put a hand down my jeans to grip my penis, until I reach the toilet, otherwise I will simply wet myself. I live on a barge in London with a ‘wee jug’.

MS is a chronic and invisible neurological condition impacting millions worldwide. Everyday life for those with MS poses emotional and social challenges, and may affect ability to walk, talk, sit up and move; even to holding urine and regulating body temperature is challenging.

These photos aim to capture the raw realities and triumphs of people living with MS, telling their stories of strength, courage and determination that often go unnoticed plus the resilient c’est la vie mentality; showing their daily struggles and to provide a sense of comradely.

The aim "Seeing the Unseen" is to inspire and motivate others living with MS, their families, friends, work colleagues and the public by shedding light on this complex condition